Seizure control seems to be mostly back, after 2 weeks away. They have been decreasing in strength and frequency. We only saw 1 or 2 yesterday and 1 so far today, so hopefully they will die out again completely.<\/p>\n
On Friday afternoon, I caught the first whiff of ketones in Nora’s urine again. Gross, I\u00a0 know, but it seems to be the best overall measure of ketosis. We are getting more 160+ readings on the ketostix, but still see an occasional low reading, possibility when her urine is dilute.<\/p>\n
Her doctor also gave us a prescription for carnitine, the protein supplement to help her process long-chain fats. She had her first dose today. I am glad that her seizure control improved before starting the carnitine, so that we can\u00a0 better understand the cause-effect relationship of the diet and supplement. I hope that the carnitine can provide a kind of insurance-policy against future loss of ketosis, helping her to process those long-chain fatty acids into energy.<\/p>\n
<\/p>\n","protected":false},"excerpt":{"rendered":"
Seizure control seems to be mostly back, after 2 weeks away. They have been decreasing in strength and frequency. We only saw 1 or 2 yesterday and 1 so far today, so hopefully they will die out again completely. On … Continue reading