The Virtues of Fiber

Fiber is our friend. It is counted as a carb on nutritional labels, but we can subtract it out of the “total carbs” to get effective “net carbs.” It lets Nora eat fabulous things like La Tortilla Factory’s Smart and Delicious Low Carb, High Fiber Tortillas. Nora eats some of these tortillas every day, either in 1/8 sections (4.5 g) or 1/4 sections (9 g). They are big, so that little part of a tortilla goes a long way. I know the nutritional specs by heart–1/4 of a tortilla has:
1.5 g net carbs
2 g protein
0.75 g fat
3 g fiber

Wowza. And they taste good, in addition to being quite sturdy. Nora eats them with her “cinnabutter” (butter mixed with a bit of cinnamon, sometimes also delivering coconut oil), as a quesadilla several times a week, as a pizza “crust,” and in our latest version, a “dogsadilla,” wrapped around a hot dog.

Fiber is also our friend for reasons that we all know and love: it gets the poop out. As we have learned the hard way, constipation = seizures. I don’t fully understand the technical explanation (it has to do with the vagus nerve), but our keto doctor says that it is extremely common, in addition to jiving with our experience.

And the keto diet is quite constipating. We’ve tried several things suggested by the dietician. Miralax is a gentle laxative, but we are wary and have not had great luck. We have given Nora a magnesium supplement called Calm that comes in a no-carb “lemonade” flavor, which helps to relax the muscle walls to ease the poop out. We have mixed the lemonade version with the unflavored version at a 2:1 ratio to get more supplement and less flavorings. Nora likes having something tasty to drink. We took a break from Calm supplements for awhile because of a separate acidity issue (more next week on that), but Nora seems a bit constipated again, and I’m wondering if the break from Calm is the culprit. We’ve started giving her 1 teaspoon mixed in water in the morning and 1 tsp in the evening again.

We also give her baths in epsom salts as a way to absorb more magnesium. Ted is a big fan of the epsom salt baths, and it’s darn nice for her.

Back to fiber. The last time she was constipated, we talked to the dietician about her fiber requirements. Looking back, it seems odd to me that they don’t make this part of the keto calculations. If constipation is a problem–let fiber do the job! More bulky yummy foods! Have your red peppers and avocados and raspberries and eat them too!

The dietician said that a rule of thumb for a child’s fiber requirements is to take the child’s age and add 5. So Nora needs 8 grams of fiber per day. We had started tracking it just before talking to the dietician, and she wasn’t too far away from that. Since then, we have tracked fiber along with her carbs, protein and fat. She normally gets 9-12 g of fiber per day now. But another thing to remember: Fiber bulks up the stuff passing out, so can be a constipation threat if you don’t drink enough water. So keep on the water requirements too.

Nutrition information for 1 Tbsp of Bob's Red Mill flaxseed meal.

Nora now eats several high-fiber fruits and veggies per day, and we pick up extra fiber in other ways, like her fabulous tortillas. As I mentioned in the B^3 post, I add flax meal to recipes to up the fiber content. I add some flax to almost everything I bake. The carbs in flax are purely fiber, so it adds nothing to the carb count, only to fiber, protein and fat. In addition, it has all kinds of great fats. Look at that nutritional information! 0 net carbs, 2 g fiber! When we need to push more fiber, we mix it in to butter and serve it on a flacker. Oh! Flackers are awesome too! Crackers made out of flax seeds, pressed and baked together. They are tasty. I know the nutrition info of 1 flacker without looking too:
0.35 net carbs
1.65 protein
2.65 fat
2.33 fiber

As a rule of thumb, I now look for fruits and veggies that have net carbs equal to fiber. So at least 1/2 of the total carbs come from fiber. Avocados are the gold standard. Red pepper has been Nora’s go-to veggie for months now. We have just discovered the amazing raspberry. Unfortunately, I have the impression that many frozen raspberries are pre-sweetened, so check your brands. We are lucky to live in the heart of berry growing country (along with growing almost everything else), and we can get frozen Stahlbush Island Farm unsweetened raspberries all year. A few raspberries have been Nora’s reward for drinking her baking soda water (more on the acid issue later). I’m also planning on making raspberry scones tomorrow. I suspect that there is not more raspberry-love in the low-carb community because of a lack of unsweetened frozen berries. I will sing their praises here.

For other fruits and veggies, we note the fiber but it’s not so great. Apples are not so great, but Nora won’t give up her 10 g of apples (3 tiny slivers = 1.25 net carbs, 0.25 fiber). She was pining after our sweet potato one evening (funny how that happens with this diet), so I measured and gave her a chunk. I don’t remember the numbers, but it was a big chunk of her carbs in a very small (but tasty) package. We don’t eat sweet potatoes in front of her anymore. We had our first spring asparagus tonight, and I was happy that it met my rule of thumb, although Nora was not enthusiastic.

My message to keto familes–make fiber happen!

We press on

Nora is still having a few myoclonic seizures a day, 10 days after we lost seizure control. It is frustrating because we have been checking and re-checking and following the diet to the letter. We have not been able to regain the hard ketosis that worked so well before. On top of it, she seems quite constipated, which is a known seizure trigger.

I spoke with her dietician today. We talked through the situation and decided on a plan of action. And I was reassured that we should plan to suffer through another week. If it breaks sooner, we shall rejoice.

On the issue of regaining ketosis, she suggested that we add coconut oil into Nora’s diet, a medium-chain triglyceride. This kind of fat is much easier for the body to convert into ketones and can help strengthen the keto response more quickly than long-chain fats. As a happy side effect, it is also a mild laxative. We will be adding 5 g of coconut oil, 3 times per day. I had made some peanut butter coconut oil cookies a month ago and froze some, so I took them out today and Nora was a happy camper and she got at least 4.5 g of coconut oil to boot. If they work out this week, I will post the recipe.

Yesterday Ted went on a fiber crusade for the constipation, but fiber only works if she drinks enough fluid to move it through. The dietician said that the fiber rule-of-thumb for kids is her age plus 5, so Nora should get 8-9 grams of fiber. She has already been pretty close to that number on a daily basis because she gets lots of flax, carrots and red peppers in her diet, so we will keep on top of that number too.

We’ve also been reading about a protein called carnitine that is required to get long-chain fats into the mitochondria to be converted to energy (but medium-chain fats do not need this protein to move in, which makes them easier to convert, hence the coconut oil). In ketosis, this protein can be depleted because so much fat is being synthesized. The medical community is not clear on whether ketogenic diet and/or Depokote users need carnitine supplements: some prescribe it as a matter of course, others will not prescribe it unless carnitine levels are measurably low (which is the view taken by Nora’s doctor). For now, we will leave that on the table and consider trying a supplement if the coconut oil and time do not resolve the issue soon.

We will go up to Portland to the keto-clinic to meet with Nora’s doctor and dietician at the end of the month. I’m sure that they will check all of her blood levels also. As a side benefit, it seems that a trip to the doctor always magically resolves all issues. Two weeks is just the right amount of time to fix it all up.

As to why this happened, we will remain in the dark. The dietician said that seemingly small changes can make a big difference–like getting too many calories and having new brownies in the same day. Or it could be something internal to Nora–a growth spurt or development phase. Whatever the cause, it is common to take several weeks to get control back, so we will continue on the path.

First restaurant visit a victory

In the almost 3 months of Nora’s diet, I don’t think that we have been to a restaurant as a family, especially one that had been a family favorite like Sunnyside Up. The kids are accustomed to getting blueberry pancakes there, which will not fly for Nora.

Today we took the plunge and it went great. I brought food for Nora, including one of her mini-pumpkin muffins with double cream cheese. Anders ordered his favorite blueberry pancakes with a side of bacon. Nora had some of his bacon and they made her some steamed heavy cream, to which I added some cocoa and calcium that I brought with. No requests nor complaints!

We had just visited the library, so both kids were armed with some new books. Nora was absorbed in a comic book version of Totoro. For 15 blessed minutes, Ted read the directions to his new board game, I knitted and drank coffee, and the kids read their books in peace. It’s nice to get a tiny glimpse of a reduced-drama future.

Ode to Double Devonshire Cream

Mmmm, double cream. A truly English indulgence. And a staple of Nora’s diet.

Today I picked up a whole case of double cream on Co-op Owner Day. 10% discount for ordering a case, 10% discount for picking it up on Owner Day. Aww yeah, 1 jar is normally $8 to $9 each, so that case special saves us about $20. Damn, really? That’s a lot of bacon.

We use double cream to sneakily boost the fat in Nora’s daily diet. We mix it 1:1 with Traditional Greek Yogurt to create Norgurt, with 0.55 g carbs, 0.25 g protein, and 4 g of fat per tablespoon. She eats up to 4 tablespoons (1/4 c) of Norgurt per day to deliver her morning and evening Depokote “sprinkles.”

We also mix it 1:1 with plain cream cheese (our buddies Mike and Cora like to buy a pound of cream cheese from the Co-op with the discount, then split it with us). One tablespoon of “double cream cheese” has 0.45 g carbs, 0.5 g protein and 5.5 g fat. That’s a heck of a ratio too. And it is so creamy and spreadable, as you might imagine.

One of my goals is to make the diet as palatable as possible for her, and one strategy is to mix in the fat where I can, rather than just trying to load her up on pure fat alongside regular foods. She does like to eat butter on flackers, and she does need to have up to 1/2 c of cream plus cocoa per day. But otherwise I try to make her meals as normal as possible.

Last month, I bought 4 jars on the Co-op owner day for the 10% discount, and used it up in 2 weeks or less. I think we went through 8-10 jars last month, so we should have no problem using up 12. It must stay refrigerated (not frozen) and has a great shelf life. The jars I bought today do not expire until August 2012, 6 months from now. No problem.

We have also been using a truly French indulgence, St. Andre Triple Cream Brie (0.5 oz/14 g has 0 g carbs, 1.5 g protein, 6 g fat). I’ve had to be careful to check the dates because it is not always terribly fresh. Today, a cheese worker at the co-op told me that it comes pre-cut, and directed me to Délice de Bourgogne from Didier Lincet, another triple cream brie. It has a touch of carbs and a bit less fat: per 0.5 oz/14 g, it has 0.35 g carbs, 1.5 g protein, 5.5 g fat. You can see that this one has a bit more carbs (from the natural sugar in milk, lactose) and a bit less fat. This one is cut and wrapped at the co-op, so it is consistently fresher. Nora ate that on a flacker, and asked for more. I biked all of the groceries home, so I enjoyed a taste as well. It’s a nice cheese.

As you can guess, this diet is not cheap. High-quality fats are expensive. We are thankful that we have the means to provide Nora with a high-quality high-fat diet, although I try to save money when I can. One of my first purchases after starting this diet was a case of organic butter. Luckily, that freezes well and we have only used about 1/2 of the case so far. Before we started the diet, Nora’s beloved teacher Dorothy (and former nurse) suggested that we just give Nora a bowl of organic butter and let her spoon it up. That’s not so far from the truth!


Today’s lesson: Vomiting

It had to happen eventually–Nora is sick. She has not been able to keep anything down yet today. We will find out what the docs think we should do about her medication.

I thought ahead and checked into this the last time Anders was sick. Our dietician said that she could eat a few saltines (2 carbs each) and a no-carb electrolyte drink. That should not interfere with ketosis and get her through the illness. Keep your fingers crossed for a 24 hour thing. The last one Anders had was quick.

On the bright side, I was already scheduled to stay home with Nora today. We will snuggle and catch up on our favorite PBS shows.